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Brooklyn Butler’s Month

October 2nd, 2008

October is Rett Syndrome awareness month, since I know a beautiful little girl with Rett Syndrome, I’m going to help raise awareness by highlighting her on my blog. Many of you probably don’t know what Rett Syndrome is. I didn’t either until a dear friend’s daughter Brooklyn was diagnosed. Her mom now works for Girl Power 2 Cure a Rett Syndrome advocacy group, they work hard to raise awareness and to raise funds for researching a cure. Check out Brooklyn’s blog, check it out see what life it like for a little girl with Rett Syndrome.

FACTS
A few facts about Rett Syndrome to consider:
* It is a debilitating neurological disorder that mainly affects girls
* It is the most severe form of AUTISM
* It is the leading cause of severe impairment in females – most cannot speak, walk, or use their hands
* Is caused by a random gene mutation, every baby girl has an equal chance of acquiring
* Another baby girl is born afflicted every 90 minutes
* It COULD be the first childhood neurological disorder CURED!!


Check out Brooklyn’s Girl Power 2 Cure site.

2 Comments to “Brooklyn Butler’s Month”
  1. Kelly on October 2, 2008 at 7:44 am

    Susy,
    This is such a beautiful post! I appreciate your help in spreading the word about Rett Syndrome!THANK YOU!
    Kelly

    Reply to Kelly's comment

  2. The Season of Giving at Chiot’s Run on December 6, 2008 at 5:24 am

    […] because some friends of ours have a beautiful daughter Brooklyn with Rett Syndrome. I wrote about Brooklyn back at the beginning of October since it was Rett Sydrome Awareness month. If you’d like to […]

    Reply to The Season of Giving at Chiot’s Run's comment

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This is a daily journal of my efforts to cultivate a more simple life, through local eating, gardening and so many other things. We used to live in a small suburban neighborhood Ohio but moved to 153 acres in Liberty, Maine in 2012.

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